Congrats Ding-

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Zzzzzzz.. Zzzzzzz.. Braaaaaapp!

Zzzzzzzzzzzzzz....

So, , , , I've been getting monthly blood labs and will continue to do so, , , , , along with vitamins.

But, the first week of August I had another bone marrow biopsy at the Lake Nona VA. The folks at Vanderbilt looked it all over and got with my Lake Nona VA Oncologist and she called me yesterday morning. No MDS or leukemia but, there are still "genetic abnormalities" in my marrow, etc. No Change from previous analysis.

The Nashville VA will put my folder "back in the filing cabinet" on October 1st. The Nashville VA/Vanderbilt will still be my "official" bone marrow transplant team for the rest of my life.

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Dora Hates You

Edited: 10/17/2020 at 10:19 AM by dingpatch

Great news Ding! You have a great team in Nashville. Praying for you every day

I've turned into a fan of New York University-Langone Medical Center's "Doctor Radio" on XM. They've found some talkative real MDs around NYU. Some of their best friends are at Vanderbilt. I haven't been to the Viera clinic for years. My father was a regular patient. Have a happy Thursday.

I had my more-or-less last appointment with the Lake Nona VA Transplant office yesterday. They are there if I need them again.

I went there to get the last of my vaccinations but, did not get any! First, my platelets are too low and I would bruise and have other "effects" from any injections. And, more importantly, my immune system is border-line critically low and, as such, a vaccination won't work on me. My immune system will not react to it very much and, as such, I would not produce many of the intended antibodies!!! Maybe later, , , , Big If. But, last year and earlier this year I did get all of the important ones so, I'm good-to-go.

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Dora Hates You

BUT NOW! FUCK ME ONCE AGAIN!

I had my 11th bone marrow bipsy on Wednesday. My Oncologist just called me. The results are No Fucking Good. No Leukemia, but they are now pretty certain that I do have MDS.

I start the "belly shot" chemo this Monday morning. I may be able to get by with just the chemo because it did work very well last year.

We'll "go from there" but, Nashville is once again going to call me. I am totally Not Happy but, as before, I am so grateful that I will be treated by the top doctors at a National Center of Excellence.

"Would you rather get treated here today by the Doctors who wrote the Paper, or would you rather get treated somewhere else next week by Doctors who are reading the instructions?"

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Dora Hates You