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Topic Title: PHASE 2 of my consolidated Bone Marrow Transplant blog Topic Summary: Created On: 01/16/2020 08:19 AM |
Linear : Threading : Single : Branch |
- dingpatch | - 01/16/2020 08:19 AM |
- dingpatch | - 01/18/2020 04:48 AM |
- SunriseSurfer | - 01/18/2020 04:57 AM |
- dingpatch | - 01/18/2020 05:46 AM |
- dingpatch | - 01/20/2020 05:19 AM |
- dingpatch | - 01/21/2020 11:32 AM |
- waterlizard25 | - 01/22/2020 05:54 AM |
- Central Floridave | - 01/22/2020 07:03 AM |
- dingpatch | - 01/22/2020 07:05 AM |
- ww | - 01/22/2020 09:44 PM |
- ww | - 01/22/2020 09:45 PM |
- dingpatch | - 01/25/2020 04:47 AM |
- wtf | - 01/27/2020 05:39 AM |
- dingpatch | - 02/01/2020 04:07 PM |
- waterlizard25 | - 02/04/2020 01:09 PM |
- dingpatch | - 02/05/2020 06:48 AM |
- ww | - 02/06/2020 08:42 PM |
- dingpatch | - 02/07/2020 05:34 AM |
- steveholloway | - 02/07/2020 07:51 AM |
- Greensleeves | - 02/07/2020 01:11 PM |
- dingpatch | - 02/11/2020 03:26 AM |
- Cole | - 02/20/2020 07:52 AM |
- dingpatch | - 02/26/2020 02:41 PM |
- dingpatch | - 03/08/2020 02:24 PM |
- Cole | - 03/08/2020 06:44 PM |
- dingpatch | - 03/09/2020 02:22 PM |
- dingpatch | - 03/19/2020 12:46 PM |
- dingpatch | - 03/25/2020 09:37 AM |
- dingpatch | - 04/02/2020 11:37 AM |
- dingpatch | - 04/06/2020 01:04 PM |
- dingpatch | - 04/10/2020 07:28 PM |
- dingpatch | - 04/22/2020 09:16 AM |
- dingpatch | - 05/06/2020 04:20 PM |
- dingpatch | - 05/08/2020 04:13 PM |
- dingpatch | - 05/14/2020 06:39 PM |
- Cole | - 05/15/2020 02:04 PM |
- dingpatch | - 05/15/2020 02:22 PM |
- dingpatch | - 05/18/2020 02:14 PM |
- theglide | - 02/07/2020 05:14 PM |
- Central Floridave | - 05/19/2020 05:31 AM |
- Greensleeves | - 05/19/2020 06:00 AM |
- dingpatch | - 05/19/2020 07:34 AM |
- Central Floridave | - 05/19/2020 08:15 AM |
- HAPDigital | - 05/19/2020 12:24 PM |
- dingpatch | - 05/20/2020 06:08 AM |
- dingpatch | - 05/20/2020 09:37 AM |
- HAPDigital | - 05/20/2020 11:14 AM |
- HAPDigital | - 05/20/2020 11:16 AM |
- Cole | - 05/20/2020 11:45 AM |
- dingpatch | - 05/20/2020 12:19 PM |
- dingpatch | - 05/22/2020 04:39 AM |
- dingpatch | - 06/03/2020 12:52 PM |
- dingpatch | - 07/05/2020 05:28 AM |
- Cole | - 07/05/2020 02:19 PM |
- fishkller | - 07/05/2020 03:07 PM |
- dingpatch | - 09/16/2020 11:52 AM |
- waterlizard25 | - 09/21/2020 07:38 AM |
- ww | - 09/28/2020 08:39 PM |
- dingpatch | - 10/17/2020 10:26 AM |
- dingpatch | - 01/08/2021 12:52 PM |
- Greensleeves | - 01/08/2021 01:10 PM |
- ww | - 01/08/2021 05:06 PM |
- dingpatch | - 01/13/2021 03:25 AM |
- dingpatch | - 01/14/2021 03:40 AM |
- dingpatch | - 01/17/2021 04:44 AM |
- Central Floridave | - 01/17/2021 06:02 AM |
- Greensleeves | - 01/18/2021 06:00 AM |
- Cole | - 01/18/2021 06:28 AM |
- dingpatch | - 01/18/2021 08:12 AM |
- dingpatch | - 02/10/2021 03:23 AM |
- Cole | - 02/11/2021 04:10 PM |
- dingpatch | - 02/12/2021 03:17 AM |
- Cole | - 02/12/2021 04:31 AM |
- dingpatch | - 02/12/2021 02:45 PM |
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05/08/2020 04:13 PM
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If anything is not OK with my bone marrow, or the PET scan, I figure that my Oncologist will talk to me about it during my visit with her Monday morning.
------------------------- Dora Hates You |
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05/14/2020 06:39 PM
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Timeline:
1st week testing and review results 2nd week get line, admitted and start chemo 3rd week finish chemo and transplant: Day 0 In hopstial probably for another 14 days til blood count recovery You will be in Nashville for at least 100 days after Day 0 during your inpatient stay, you do not have to have a support person there the whole time. We encourage, but not required. You listen very well. Damn near perfect!! AND, , , , the chemo is starting to work a little bit better, , , , my White Count is "up" to 3.9!! 4.2 is the minimum of the "normal range. And, the VA NP and Doctor made it very clear to me last week that after this Transplant, I WILL BE THEIR PATIENT for the rest of eternity in regard to anything to do with the transplant. Anything in regard to "check ups", "follow ups", "problems", etc will be done in Nashville. The Lake Nona location will only be a starting "reference" point. Lots of travel coming up over the 12 months after the Transplant. ------------------------- Dora Hates You Edited: 05/14/2020 at 07:00 PM by dingpatch |
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05/15/2020 02:04 PM
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Thank the Maker you have the VA. Just imagine trying to do this as a regular person. Treatment has to be in the millions.
------------------------- I was right. |
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05/15/2020 02:22 PM
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Not quite "millions" but last time they told me it was really close to 1/4! (BUT, I did do a search and found that "Joe Public of my age would end up creating "billings" of over $1 million!!!!
But the VA and Vanderbilt have a symbiotic relationship on this: The VA Medical Center is located in the middle of Vandy's campus and it is physically connected to the Vandy Medical Center and Cancer Institute. The VA gets to have access to all of Vandy's "state of the art" treatments and stem cell research/specialists (along with many other organ transplant disciplines). Vandy gets to have access to the large VA pool of patients and the Vandy doctors work at the VA, for the VA, and as such, Vandy does not have to cover any "liability insurance costs" for their efforts at the VA!!! It works to everyone's best interests. Between the VA and Vandy, that location performs more bone marrow/stem cell, kidney, liver and lung transplants that any other place in the country! Again, I had previously been upset about being sent to a VA facility in Tennessee (before I knew what really goes on there). "Why can't you send me to somewhere good here in Florida like Moffitt?" "Well, would you rather get treated here by the doctors that wrote the paper or, do you want to get treated somewhere else where the doctors are reading the instructions?" !!!!!! ------------------------- Dora Hates You Edited: 05/19/2020 at 07:39 AM by dingpatch |
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05/18/2020 02:14 PM
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Finished the 5th round of "belly shot chemo" this past Friday (5/15/20). Same old but, my little belly is pretty darn tender right now. Not too tired or such but, my "taste" aint no good. Oh well, could be worse.
------------------------- Dora Hates You Edited: 05/18/2020 at 02:21 PM by dingpatch |
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FORUMS
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NPNR
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PHASE 2 of my consolidated Bone Marrow Transplant ...
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