05/20/2020 09:37 AM
|
dingpatch
Posts: 19032
Joined Forum: 07/24/2003
|
OK, SO!!!!!!!
Got a call from the Nashville VA this morning. The results of the "deep dive" that the experts at Vanderbilt did into my bone marrow biopsy of 5/5/20 came back Monday (5/18/20). The transplant team had a meeting yesterday and it HAS BEEN DETERMINED that I DO NOT have to have a bone marrow transplant!!!!!!
Total OMG! I was in tears. Time for some serious Day Drinking!!!!!!
There are some "anomalies" with the genetics of my bone marrow but, no more treatments required. I'm stopping the "belly shots" chemo and I'm going to go on a course of vitamins that they are going to prescribe. I'll have blood labs done the first week of July and we will go from there, , , , ,! OMG!!!
But, without Vanderbilt's "Deep Dive", everything would still point to me having "MDS". I am so F'ing lucky to be able to be treated by such World Leading Experts!!!
-------------------------
Dora Hates You
Edited: 05/20/2020 at 12:22 PM by dingpatch
|
|
|
05/20/2020 11:14 AM
|
HAPDigital
Posts: 16855
Joined Forum: 11/29/2004
|
Grats! Free fins all around???
|
|
|
05/20/2020 11:16 AM
|
HAPDigital
Posts: 16855
Joined Forum: 11/29/2004
|
Really though, that's great news. WTF wants a bone marrow transplant. F that noise!!
|
|
|
05/20/2020 11:45 AM
|
Cole
Posts: 68177
Joined Forum: 07/22/2003
|
Score! Epic news.
Free fins all around!
Sorry, had to do it. lol
-------------------------
I was right.
|
|
|
05/20/2020 12:19 PM
|
dingpatch
Posts: 19032
Joined Forum: 07/24/2003
|
-------------------------
Dora Hates You
|
|
|
05/22/2020 04:39 AM
|
dingpatch
Posts: 19032
Joined Forum: 07/24/2003
|
But now, , , , I may still have a problem with my bone marrow. No MDS or Leukemia but, the VA is digging into it to see if it is a singularly diagnosable "malady". But, it may be "just one of those things, , , ,".
-------------------------
Dora Hates You
|
|
|
06/03/2020 12:52 PM
|
dingpatch
Posts: 19032
Joined Forum: 07/24/2003
|
Vanderbilt had reviewed the original biopsy slides and pathology report from my December 2019 bone marrow biopsy at Lake Nona and they found a couple things of "interest" and, as such, that is why they needed/wanted to do the "Deep Dive" into my marrow. I am off of the "belly shot" chemo! Just following the oncologist's orders to continue with my vitamins. It seems that the "lack" of certain vitamins can have some detrimental effects on bone marrow. The VA found that I have a autoimmune kinda thingy that prevents me from fully taking in dietary vitamin B-12 so, I will continue to have a B-12 shot once a month, , , ,. The "big 3" vitamins for this is D, folic acid and B-12. I'm still going to get blood labs drawn the first week of July and, , , , we'll go from there. For now, it could go into another course of treatments, maybe not.
Last night while I was eating my All You Can Eat Tacos at Tracy's Lounge (they make The Best tacos you will find anywhere around here. Their shrimp tacos are what dreams are made of, , , ,!) anyway, one of the regulars told me that I should get a "second opinion"? I guess he wasn't listening too good to my story or, he just did not "get it"? I told him ", , , , No, the cancer and bone marrow folks at VA/Vanderbilt gave me their best Biopsy Pathology study and report. Vanderbilt is The Opinion!
-------------------------
Dora Hates You
Edited: 07/05/2020 at 05:25 AM by dingpatch
|
|
|
07/05/2020 05:28 AM
|
dingpatch
Posts: 19032
Joined Forum: 07/24/2003
|
Yay!!!!!!!!!
Today is my second Second Birthday! I had my Bone Marrow Transplant on July 5th, 2018.
Nothing new to report, at least not until I get the results of the blood work that will be drawn tomorrow in Viera.
Will advise.
-------------------------
Dora Hates You
|
|
|
07/05/2020 02:19 PM
|
Cole
Posts: 68177
Joined Forum: 07/22/2003
|
Nothing new to report
And keep it that way. No news is good news.
-------------------------
I was right.
|
|
|