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Topic Title: PHASE 2 of my consolidated Bone Marrow Transplant blog
Topic Summary:
Created On: 01/16/2020 08:19 AM
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 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 01/16/2020 08:19 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 01/18/2020 04:48 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - SunriseSurfer - 01/18/2020 04:57 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 01/18/2020 05:46 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 01/20/2020 05:19 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 01/21/2020 11:32 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - waterlizard25 - 01/22/2020 05:54 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - Central Floridave - 01/22/2020 07:03 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 01/22/2020 07:05 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - ww - 01/22/2020 09:44 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - ww - 01/22/2020 09:45 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 01/25/2020 04:47 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - wtf - 01/27/2020 05:39 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 02/01/2020 04:07 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - waterlizard25 - 02/04/2020 01:09 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 02/05/2020 06:48 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - ww - 02/06/2020 08:42 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 02/07/2020 05:34 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - steveholloway - 02/07/2020 07:51 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - Greensleeves - 02/07/2020 01:11 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 02/11/2020 03:26 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - Cole - 02/20/2020 07:52 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 02/26/2020 02:41 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 03/08/2020 02:24 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - Cole - 03/08/2020 06:44 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 03/09/2020 02:22 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 03/19/2020 12:46 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 03/25/2020 09:37 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 04/02/2020 11:37 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 04/06/2020 01:04 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 04/10/2020 07:28 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 04/22/2020 09:16 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 05/06/2020 04:20 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 05/08/2020 04:13 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 05/14/2020 06:39 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - Cole - 05/15/2020 02:04 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 05/15/2020 02:22 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 05/18/2020 02:14 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - theglide - 02/07/2020 05:14 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - Central Floridave - 05/19/2020 05:31 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - Greensleeves - 05/19/2020 06:00 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 05/19/2020 07:34 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - Central Floridave - 05/19/2020 08:15 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - HAPDigital - 05/19/2020 12:24 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 05/20/2020 06:08 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 05/20/2020 09:37 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - HAPDigital - 05/20/2020 11:14 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - HAPDigital - 05/20/2020 11:16 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - Cole - 05/20/2020 11:45 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 05/20/2020 12:19 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 05/22/2020 04:39 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 06/03/2020 12:52 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 07/05/2020 05:28 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - Cole - 07/05/2020 02:19 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - fishkller - 07/05/2020 03:07 PM  
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 01/16/2020 08:19 AM
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dingpatch

Posts: 15162
Joined Forum: 07/24/2003

It's Deja Vu all over again!!!

To recap recent activity, , , , ,

FOOK Me!!!!

>>>. I had blood labs 12/19/19 to check to see if my "counts" had come up after all the B12 and Folic acid. After the chemo in 2018, my blood "counts" will never be as high as they once were, OK, knew that, , , , ,!

BUT NOW, , , , they are still low; too low for my Oncologist to be happy, , , , ,!

So, I'm going to have the pleasure of having another bone marrow biopsy (my 4th, they are so easy to forget, , , ,)! The Lake Nona VA does bone marrow biopsies on Wednesdays but, that is Christmas and New Years Day, and my Docotor wants it done ASAP so they have made special arrangements and scheduled my biopsy for the 30th. So cool, I just can not wait, , , , , NOT!!! LOL

My Oncologist also told me to keep close track of my temperature; if I get a fever, GO to the ER ASAP because I have a very weak immune system.

>>>. Bone marrow biopsy results are in and I have a case of Myelodysplastic Syndrome. Not too big of a deal, considering that it could have been Acute Leukemia!!!

Going to start rounds of a light chemo. No "infusions", just little shots in the belly.

BUT, good possibility of another free vacation (LOL) in Nashville for a "bone marrow transplant".

>>>. The "ball" has already started rolling, , , , , ALL of my counts are low, and my White Count is Critically Low. IF I get a fever, I am to go to the ER.

My VA Oncologist called me shortly after I got home yesterday afternoon. I start chemo this Monday (1-13-20), and then every day after that for the rest of the week. Rinse-and-repeat again for 5 days every following month until there is an improvement in my blood counts.

BUT, it will not stop there. The Director of the Bone Marrow Transplant unit in Nashville has already placed orders to have me start the process of returning to Nashville for a new transplant! Although, this time, I will need a compatible bone marrow/stem cell donor. My own bone marrow is No Fucking Good.

My brother will be the first donor candidate. If he is not a "match", I'm open to suggestions. Who here would like to be my BFF and get a free trip to Nashville? Nope, my Brother is No F'ing Good. He is "too old" and he has had Melanoma! The VA will look at "Be The Match" for a donor.

Oh, and, , , , the down side for you would be the blood tests for "substances": NO THC, NO nicotine (no smoke, dip, gum or patches!), NO NICOTINE.

YEP! Got the call this morning (1-16-20), I have my first appointment with "Transplant" on Febuary 7 and after that, the ball will be in full motion!!

Edited: 05/18/2020 at 02:02 PM by dingpatch
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