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Topic Title: PHASE 2 of my consolidated Bone Marrow Transplant blog
Topic Summary:
Created On: 01/16/2020 08:19 AM
Linear : Threading : Single : Branch
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 01/16/2020 08:19 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 01/18/2020 04:48 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - SunriseSurfer - 01/18/2020 04:57 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 01/18/2020 05:46 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 01/20/2020 05:19 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 01/21/2020 11:32 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - waterlizard25 - 01/22/2020 05:54 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - Central Floridave - 01/22/2020 07:03 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 01/22/2020 07:05 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - ww - 01/22/2020 09:44 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - ww - 01/22/2020 09:45 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 01/25/2020 04:47 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - wtf - 01/27/2020 05:39 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 02/01/2020 04:07 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - waterlizard25 - 02/04/2020 01:09 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 02/05/2020 06:48 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - ww - 02/06/2020 08:42 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 02/07/2020 05:34 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - steveholloway - 02/07/2020 07:51 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - Greensleeves - 02/07/2020 01:11 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 02/11/2020 03:26 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - Cole - 02/20/2020 07:52 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 02/26/2020 02:41 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 03/08/2020 02:24 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - Cole - 03/08/2020 06:44 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 03/09/2020 02:22 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 03/19/2020 12:46 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 03/25/2020 09:37 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 04/02/2020 11:37 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 04/06/2020 01:04 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 04/10/2020 07:28 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 04/22/2020 09:16 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 05/06/2020 04:20 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 05/08/2020 04:13 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 05/14/2020 06:39 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - Cole - 05/15/2020 02:04 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 05/15/2020 02:22 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 05/18/2020 02:14 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - theglide - 02/07/2020 05:14 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - Central Floridave - 05/19/2020 05:31 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - Greensleeves - 05/19/2020 06:00 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 05/19/2020 07:34 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - Central Floridave - 05/19/2020 08:15 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - HAPDigital - 05/19/2020 12:24 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 05/20/2020 06:08 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 05/20/2020 09:37 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - HAPDigital - 05/20/2020 11:14 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - HAPDigital - 05/20/2020 11:16 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - Cole - 05/20/2020 11:45 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 05/20/2020 12:19 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 05/22/2020 04:39 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 06/03/2020 12:52 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 07/05/2020 05:28 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - Cole - 07/05/2020 02:19 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - fishkller - 07/05/2020 03:07 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 09/16/2020 11:52 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - waterlizard25 - 09/21/2020 07:38 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - ww - 09/28/2020 08:39 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 10/17/2020 10:26 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 01/08/2021 12:52 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - Greensleeves - 01/08/2021 01:10 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - ww - 01/08/2021 05:06 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 01/13/2021 03:25 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 01/14/2021 03:40 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 01/17/2021 04:44 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - Central Floridave - 01/17/2021 06:02 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - Greensleeves - 01/18/2021 06:00 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - Cole - 01/18/2021 06:28 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 01/18/2021 08:12 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 02/10/2021 03:23 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - Cole - 02/11/2021 04:10 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 02/12/2021 03:17 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - Cole - 02/12/2021 04:31 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 02/12/2021 02:45 PM  
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 05/14/2020 06:39 PM
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dingpatch

Posts: 19032
Joined Forum: 07/24/2003

Timeline:
1st week testing and review results
2nd week get line, admitted and start chemo
3rd week finish chemo and transplant: Day 0
In hopstial probably for another 14 days til blood count recovery

You will be in Nashville for at least 100 days after Day 0
during your inpatient stay, you do not have to have a support person there the whole time. We encourage, but not required.

You listen very well. Damn near perfect!!



AND, , , , the chemo is starting to work a little bit better, , , , my White Count is "up" to 3.9!! 4.2 is the minimum of the "normal range.

And, the VA NP and Doctor made it very clear to me last week that after this Transplant, I WILL BE THEIR PATIENT for the rest of eternity in regard to anything to do with the transplant. Anything in regard to "check ups", "follow ups", "problems", etc will be done in Nashville. The Lake Nona location will only be a starting "reference" point. Lots of travel coming up over the 12 months after the Transplant.

-------------------------
Dora Hates You

Edited: 05/14/2020 at 07:00 PM by dingpatch
 05/15/2020 02:04 PM
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Cole

Posts: 68180
Joined Forum: 07/22/2003

Thank the Maker you have the VA. Just imagine trying to do this as a regular person. Treatment has to be in the millions.

-------------------------
I was right.
 05/15/2020 02:22 PM
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dingpatch

Posts: 19032
Joined Forum: 07/24/2003

Not quite "millions" but last time they told me it was really close to 1/4! (BUT, I did do a search and found that "Joe Public of my age would end up creating "billings" of over $1 million!!!!

But the VA and Vanderbilt have a symbiotic relationship on this:

The VA Medical Center is located in the middle of Vandy's campus and it is physically connected to the Vandy Medical Center and Cancer Institute. The VA gets to have access to all of Vandy's "state of the art" treatments and stem cell research/specialists (along with many other organ transplant disciplines). Vandy gets to have access to the large VA pool of patients and the Vandy doctors work at the VA, for the VA, and as such, Vandy does not have to cover any "liability insurance costs" for their efforts at the VA!!! It works to everyone's best interests.

Between the VA and Vandy, that location performs more bone marrow/stem cell, kidney, liver and lung transplants that any other place in the country!

Again, I had previously been upset about being sent to a VA facility in Tennessee (before I knew what really goes on there). "Why can't you send me to somewhere good here in Florida like Moffitt?" "Well, would you rather get treated here by the doctors that wrote the paper or, do you want to get treated somewhere else where the doctors are reading the instructions?" !!!!!!

-------------------------
Dora Hates You

Edited: 05/19/2020 at 07:39 AM by dingpatch
 05/18/2020 02:14 PM
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dingpatch

Posts: 19032
Joined Forum: 07/24/2003

Finished the 5th round of "belly shot chemo" this past Friday (5/15/20). Same old but, my little belly is pretty darn tender right now. Not too tired or such but, my "taste" aint no good. Oh well, could be worse.

-------------------------
Dora Hates You

Edited: 05/18/2020 at 02:21 PM by dingpatch
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