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Topic Title: PHASE 2 of my consolidated Bone Marrow Transplant blog
Topic Summary:
Created On: 01/16/2020 08:19 AM
Linear : Threading : Single : Branch
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 01/16/2020 08:19 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 01/18/2020 04:48 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - SunriseSurfer - 01/18/2020 04:57 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 01/18/2020 05:46 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 01/20/2020 05:19 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 01/21/2020 11:32 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - waterlizard25 - 01/22/2020 05:54 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - Central Floridave - 01/22/2020 07:03 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 01/22/2020 07:05 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - ww - 01/22/2020 09:44 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - ww - 01/22/2020 09:45 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 01/25/2020 04:47 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - wtf - 01/27/2020 05:39 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 02/01/2020 04:07 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - waterlizard25 - 02/04/2020 01:09 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 02/05/2020 06:48 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - ww - 02/06/2020 08:42 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 02/07/2020 05:34 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - steveholloway - 02/07/2020 07:51 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - Greensleeves - 02/07/2020 01:11 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 02/11/2020 03:26 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - Cole - 02/20/2020 07:52 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 02/26/2020 02:41 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 03/08/2020 02:24 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - Cole - 03/08/2020 06:44 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 03/09/2020 02:22 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 03/19/2020 12:46 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 03/25/2020 09:37 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 04/02/2020 11:37 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 04/06/2020 01:04 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 04/10/2020 07:28 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 04/22/2020 09:16 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 05/06/2020 04:20 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 05/08/2020 04:13 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 05/14/2020 06:39 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - Cole - 05/15/2020 02:04 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 05/15/2020 02:22 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 05/18/2020 02:14 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - theglide - 02/07/2020 05:14 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - Central Floridave - 05/19/2020 05:31 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - Greensleeves - 05/19/2020 06:00 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 05/19/2020 07:34 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - Central Floridave - 05/19/2020 08:15 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - HAPDigital - 05/19/2020 12:24 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 05/20/2020 06:08 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 05/20/2020 09:37 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - HAPDigital - 05/20/2020 11:14 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - HAPDigital - 05/20/2020 11:16 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - Cole - 05/20/2020 11:45 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 05/20/2020 12:19 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 05/22/2020 04:39 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 06/03/2020 12:52 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 07/05/2020 05:28 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - Cole - 07/05/2020 02:19 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - fishkller - 07/05/2020 03:07 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 09/16/2020 11:52 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - waterlizard25 - 09/21/2020 07:38 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - ww - 09/28/2020 08:39 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 10/17/2020 10:26 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 01/08/2021 12:52 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - Greensleeves - 01/08/2021 01:10 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - ww - 01/08/2021 05:06 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 01/13/2021 03:25 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 01/14/2021 03:40 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 01/17/2021 04:44 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - Central Floridave - 01/17/2021 06:02 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - Greensleeves - 01/18/2021 06:00 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - Cole - 01/18/2021 06:28 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 01/18/2021 08:12 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 02/10/2021 03:23 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - Cole - 02/11/2021 04:10 PM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 02/12/2021 03:17 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - Cole - 02/12/2021 04:31 AM  
 PHASE 2 of my consolidated Bone Marrow Transplant blog   - dingpatch - 02/12/2021 02:45 PM  
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 04/06/2020 01:04 PM
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dingpatch

Posts: 19069
Joined Forum: 07/24/2003

Started my 4th monthly (week long) chemo at the Lake Nona VA this morning. I thought it was unusual when they took me to a room other than the regular "infusion center". From what I could see, there were open seats. The nurse said that I was getting a "private room" because they did not want me "mixing" with the other folks. Hmmmmmm!? Most of the other "folks" are no better off then I am. While I was sitting in "my" room waiting for the chemo meds to get there from the pharmacy, one of the Transplant people who was working from home called me. She asked me how I was feeling, etc. . . . and that she had seen the recent communications between Lake Nona and Nashville regarding my upcoming Transplant, etc. But then she asked me about how/what I was doing about meals and such. No problems, I know how to cook pretty darn good, etc. She asked if I was doing my own shopping. Yes, Walmart and Publix, quickly in-and-out. Well, you know that you are in the Very High Risk group (not just plain old "high risk" but VERY HIGH RISK!) and you SHOULD NOT be going into ANY stores! She told me to do "pickup" at Walmart or have Publix deliver and, again that I SHOULD NOT be going into any stores! Hmmmmmm, , , , , OK, I get it. The Fear OF God has been instilled into me.

Then, a Lake Nona Transplant nurse came in. There had been some email from Nashville concerning some additional testing they wanted done but, no hurry. Oh Boy, Goody. I get to have another Bone Marrow Biopsy (which is normally done somewhere between the 4th and 8th chemo cycle). They want me to see Dermatology for a skin check and also have a MUGU Scan (nuclear medicine heart stress test). They gave me the little "smear of poop kit" to do and turn in. And, the most very best part of it all is they want me to see the Urologist again for another "Greasy Finger" up the butt examine!!!

Today started my 4th month of this chemo and it does seem to be taking effect. My platelets are up to a "normal" range! My hemoglobin is up to "almost" a normal level, but my white count is better but still "Low" and, as such, I really do not have much of an immune system.

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Dora Hates You

Edited: 04/10/2020 at 07:21 PM by dingpatch
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