02/09/2018 07:40 AM
|
TeeBirdForever
Posts: 357
Joined Forum: 08/21/2016
|
I just want to know when I can yell at him again for saying dumb stuff.
|
|
|
02/10/2018 12:19 PM
|
SunriseSurfer
Posts: 8610
Joined Forum: 07/22/2003
|
Hey H....
... I know your food has no taste, or very little,
but wondering if you have heard of, or tried Synsepalum dulcificum??
Also known as miracle berry or miracle fruit.
I've never had it, but it is supposed to make food taste good.
Lemons are sweet after eating the fruit, etc etc.
But of course if you can't even taste something, not sure if it would help.
Stay strong, stay positive or at least try to.
You've gone through more than I can imagine,
or even thinking I could.
Wishing you the best and keeping you in my thoughts and prayers.
-------------------------
Puerto Rico 11 - 24 - 2013
|
|
|
02/10/2018 12:58 PM
|
dingpatch
Posts: 19107
Joined Forum: 07/24/2003
|
Between the VA and Vanderbilt, anything with any kind of THC in it is verboten. I'm almost over the chemo effects, so no need for the berry stuff. Just the next two weeks will be tasteless.
-------------------------
Dora Hates You
|
|
|
02/10/2018 02:15 PM
|
SunriseSurfer
Posts: 8610
Joined Forum: 07/22/2003
|
Ahhh, I understand about the VA and Vanderbilt with THC,
but I wasn't aware that it had any THC.
If so, my bad.
I'll have to check into that...
-------------------------
Puerto Rico 11 - 24 - 2013
|
|
|
02/11/2018 05:43 AM
|
dingpatch
Posts: 19107
Joined Forum: 07/24/2003
|
Oh yes, no THC in the berries.
Lots of people are telling me to smoke some though.
-------------------------
Dora Hates You
|
|
|
02/13/2018 04:53 AM
|
dingpatch
Posts: 19107
Joined Forum: 07/24/2003
|
The 6th round of Chemo, and hopefully the last! Last Thursday and Friday (2/8 - 2/9).
Yay! But, it is kicking my ragged butt big time; additive effects do add up! My taste was just coming back decently from the 5th round. But, it was gone by Sunday night! My ass is already feeling pretty "draggy", and that usually does not happen for a week or so after infusion. But, so far, so good. Told my boss yesterday that if I was going to have to have a 7th round, I'd just tell them to F-Off and let me know how long I have to live! LOL! No, I'm good-to-go for what ever this takes!!!!! I've been able to Bitch Slap this Bitch so far, and I am certainly going to continue to do so!
Still must have my "dental" work and clearance, which won't be done until late in March. The first VA Dentist I saw said that they would only remove the broken/cracked teeth that "had to go". He was pretty clear about it: during my "Close To Death" chemo in Nashville my immune system will be non-existant and, as such, NOTHING can be allowed to remain that could present any opportunities for infection.
Then, the Team in Nashville will start prodding me to get up there. My concern is still that I may have to wait too long after this last chemo and, as such, that the Team may make me have another round of chemo to ensure that I am "clean" before my stems and whites are harvested!! Crud! Keep fingers crossed, , , , , , , ,.
-------------------------
Dora Hates You
Edited: 06/06/2018 at 12:18 AM by dingpatch
|
|
|
02/13/2018 06:03 AM
|
bus
Posts: 4620
Joined Forum: 10/01/2007
|
Hang in there. You got this!
|
|
|
02/25/2018 02:45 PM
|
dingpatch
Posts: 19107
Joined Forum: 07/24/2003
|
Well, yep, , , , , hopefully done with that Chemo crap!!!!!
BUT, BUT, BUT, was way, way, too premature to be talking about how bad the 6th session was "kicking" me.
Yep, came on with a Fooking vengeance!!! Friday morning, the 16th, if I had not known I was on Chemo and what to expect, , , , I would have called 911. Yes, it was THAT BAD! It was all I could do to make little plans in my addled brain as to how/when I was going to be able to make it from the bed to the bathroom! Lost 15 pounds, and am still "down" 13!
It was not until Friday night, the 23rd, that I even had the faintest taste of anything, but much better today.
-------------------------
Dora Hates You
|
|
|
02/25/2018 04:16 PM
|
ww
Posts: 16109
Joined Forum: 08/17/2007
|
I spent a good deal of Friday with a woman (and her husband), helping them to, of all things, prune bonsai trees that had gotten somwhat out of control. She was still undergoing chemo after nearly a year, and of course was carrying on even though exhausted. She managed to seem much livelier the next day. Perhaps a wig helped give that impression. I admire her (and her husband's) coping with the ordeal.
|
|
|
03/02/2018 06:27 AM
|
Plan B
Posts: 3302
Joined Forum: 03/08/2004
|
Shit man... hang in there
|
|
|
03/12/2018 05:58 PM
|
dingpatch
Posts: 19107
Joined Forum: 07/24/2003
|
UPDATE
Had my "last" P.E.T. scan on Friday, 3/9/2018. And, I just read the radiologist's report. I'm as CLEAN AS A SAFEWAY CHITLIN! Even the few "possible", other, non-lymphoma problems seen in the December scan are gone. With my "Premium" (ID validated) My HealtheVet account I have access to ALL of my VA medical records; labs, tests, notes, etc. Very handy!
Now, I need to start getting my head around the Bone Marrow Transplant trip to Nashville.
-------------------------
Dora Hates You
|
|
|
03/13/2018 07:19 AM
|
Plan B
Posts: 3302
Joined Forum: 03/08/2004
|
GREAT NEWS
|
|
|
03/13/2018 10:02 AM
|
ww
Posts: 16109
Joined Forum: 08/17/2007
|
Bone marrow's been done for quite a long time, so they must have it figured out. Big trip.
|
|
|
03/13/2018 12:12 PM
|
tom
Posts: 8023
Joined Forum: 07/25/2003
|
Outstanding news!
Chitlins for everybody!
-------------------------
add a signature since I'm here in profile anyway
|
|
|