Keep on keeping on ding, sounds like you're fighting a great fight!

Soon it will be a bad memory.

Hope you catch LOTS of good waves with good friends in 2018!

Thanks for the awesome deal on the Greg Loehr board Ding.
I think it will clean up real nice.

You looked plenty healthy to me.

-------------------------
"The truth is incontrovertible.
malice may attack it,
ignorance may deride it,
but in the end,
there it is." -Sir Winston Churchill

Edited: 01/01/2018 at 08:53 AM by WG

Looking healthy because I've got the "Good" Lymphoma!

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Dora Hates You

Finished my 5th round of chemo today. Only one more to go!

Thought about going out and having some fun tomorrow, but but decided not to, , , , afraid that the stripp,,,. I mean the danc, , , ,. I mean the entertainers would dislodge the On-Body Nupro injector off of my arm. LOL

The VA is still on me about completing all the tests and procedures and such for the trip to Nashville. Still have to complete the dental (extractions), mental health debrief, and some additional cardiac screens. They have sent my "packet" to Nashville for review and have scheduled me, and my support person(s), for a video conference on Feb 1 with the team in Nashville.

My Health First oncologists says, but not too firmly yet, that I probably will not have to go, but that, at this point, is between me and the VA once I complete chemo and have another P.E.T scan. It will be another 6+ weeks from today until what will hopefully be the last P.E.T. scan and then I'll have to wing it from there

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Dora Hates You

Edited: 06/06/2018 at 12:09 AM by dingpatch

Well, , , , , so far, , , , this 5th go-around is kicking my ass, per se.

I could tell that it was going to come on strong by Sunday afternoon, my taste started going about 2 days earlier than previously. And, Sunday night I went to bed at 9 and did not open my eyes until 7:30; I would normally wake up around 6 no matter what, , , ,. This morning I woke up at 7 and hustled to work. No problems there.

But, my taste buds are shot to shit. My mouth does not feel bad like it did early on in treatment, but I'd at least like to be able to taste a little bit of what I'm chewing, , , ,. It will pass in a couple days. Last night I micro'd a frozen lasagne; I've had it before and it is sufficiently spicy for normal purposes, but last nigh it only tasted like rather bland cardboard! Tonight, a spicy beef burrito, same result. So, I figured I'd try to spice my life up a little bit and went and got out the very nice Maytag Blue Cheese (it is the best!) that we just got. Did not taste a single thing, , , , spit it into the sink.

Mrs. Dingpatch constantly watches the Food Network and all those good looking eats are driving me out of my chemo stricken mind!

Three more weeks until my last chemo sessions. The VA is still riding me about going to Nashville for the bone marrow thingy. Time will tell.

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Dora Hates You

Following this thread, and wishing the best for you!

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GOP:

Gaslight
Obstruct
Project

^Same here. I still find it odd that it affects your taste but i guess that could be a good thing depending on who is doing the cooking.

Kicking My Ragged Ass!!

Friday afternoon and night was "bad", or at least I thought!!

Yesterday, Saturday, taught me a lesson; as in, it can always get worse! Spent all day in bed napping and otherwise existing is suspended animation, , , ,! It was all I could muster to get up and walk to the end of the driveway to get the mail.

I've lost 10 pounds this past week; so far. Ya, sure, NOTHING tastes good. Which I can get past in order to eat what I need to, but, , , , EVERYTHING FEELS LIKE PURE SHIT in my mouth. Went for some spicy chili, hoping to at least get a little bit of flavor. Ya, could sort of taste it, but only ate about a third of it because it was so unpleasant in my mouth. Been choking down Ensures.

And, no, I have not been nauseous, and if so, I do have a heavy dose of Zofran to take. It's just that, and believe me, the "mouth feel" is just about way too much to take.

Probably going to be more of the same today.

I have been going to my part-time-play-job; small shop, only 8 guys. BUT, with the Flu going around, the Docs have told me to STAY AWAY from "public" places/crowds. With the added "day after" Neulasta my "white count" has been sufficient, but I've been told to Not Push It.

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Dora Hates You

I know you will beat this! May God Bless You

Steve,

Thank you, but for all intents and purposes I'm pretty sure I already have it beat! I have not stayed at a Holiday In Express lately, but I am pretty sure none the less.

I'll know for sure in about 6 weeks. Then, hopefully, I can get back to creating some fins!

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Dora Hates You

Damn... once you have "officially finished" kicking this,
there won't be much you can't do or handle.

I admire you for both your attitude and sharing, keeping us informed.

Prayers going out, and keeping you in our thoughts all the way through.

Stay strong and get more healthy.






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Puerto Rico 11 - 24 - 2013

Not just flu.  My doc's office reports that my nasty runny nose (virus? allergy?) is widespread.  It was pretty debilitating.  

Well, , , , , had the video conference with the VA Bone Marrow Transplant team in Nashville this afternoon.

Crap!

Not too encouraging. It was a pretty solid "This Is Why You Should Not Delay In Having This Done, , , , ,"!

Looks like 5 weeks in Nashville is in my near-term future.

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Dora Hates You

So, , , , I've decompressed so, more on the video conference with the Nashville Transplant Team.

The doctor talked about two kinds of cancer cells when you eyeball them; the first kind "looks" like a cell from the organ it came from, the second kind does not look like a cell from the organ it came from. The second kind is "angry"! My lymphoma is "angry", still easy to treat, but not as straight forward as it would be if it was not angry. "Angry" is more likely to recur than "non angry"; not a "sure thing" to recur, but just a higher percentage of recurrence, but still low.

Bottom line is: IF this lymphoma comes back a third time, the resultant Chemo Heavy Duty will make the current treatment seem like a joy. Both Oncologists (Nashville and here) start talking about "heart failure" and nice things like that after having "too much" chemo, , , , ,! And, I would still have to have a bone marrow thingy!

So, have the bone marrow done now and forego the chance of a recurrence in the future.

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Dora Hates You

Edited: 06/06/2018 at 12:14 AM by dingpatch

"I've lost 10 pounds this past week; so far. Ya, sure, NOTHING tastes good. Which I can get past in order to eat what I need to, but, , , , EVERYTHING FEELS LIKE PURE SHIT in my mouth. Went for some spicy chili, hoping to at least get a little bit of flavor. Ya, could sort of taste it, but only ate about a third of it because it was so unpleasant in my mouth."

There is a (now legal in FL for medicinal use) solution that helps with that I hear.

-------------------------
"The truth is incontrovertible.
malice may attack it,
ignorance may deride it,
but in the end,
there it is." -Sir Winston Churchill

I just want to know when I can yell at him again for saying dumb stuff.

Hey H....

... I know your food has no taste, or very little,
but wondering if you have heard of, or tried Synsepalum dulcificum??
Also known as miracle berry or miracle fruit.

I've never had it, but it is supposed to make food taste good.
Lemons are sweet after eating the fruit, etc etc.
But of course if you can't even taste something, not sure if it would help.


Stay strong, stay positive or at least try to.
You've gone through more than I can imagine,
or even thinking I could.

Wishing you the best and keeping you in my thoughts and prayers.






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Puerto Rico 11 - 24 - 2013

Between the VA and Vanderbilt, anything with any kind of THC in it is verboten. I'm almost over the chemo effects, so no need for the berry stuff. Just the next two weeks will be tasteless.

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Dora Hates You

Ahhh, I understand about the VA and Vanderbilt with THC,

but I wasn't aware that it had any THC.
If so, my bad.

I'll have to check into that...






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Puerto Rico 11 - 24 - 2013