Flew to Nville on the 7th and did two (2) days of every test they had, , , , flew home on Saturday the 10th. Everything was OK other than there was a tiny "glitch" on my EKG. Crap. They're pretty sure it is a glitch but, I do have to go to Lake Nona this Thursday morning for a cardiac nuclear stress test! My Nville VA Transplant Nurse asked me ", , , , you haven't had a heart attack in the past two weeks have you, , , ,?" LOL LOL LOL

Otherwise, if the nuke test is OK, I fly up to Nville on May 11th and start the process. My tentative Zero Day (transplant day) is June 7th.

-------------------------
Dora Hates You

Edited: 04/24/2021 at 05:29 AM by dingpatch

Good luck! Pulling for you. No heart attacks between then and now.

Stay positive ding, you'll do great!

I bet it feels good to be home, sans the heart attacks of course.

-------------------------
I was right.

Had my compulsory "Nuclear Cardiac Stress Test" yesterday at the Lake Nona VA. If everything is OK, I will get ready to fly to Nashville, , , ,. If not, , , , , the VA will put my ragged butt through EVERY cardiac procedure and test they have!!! Fook!

-------------------------
Dora Hates You

Edited: 10/18/2021 at 08:09 AM by dingpatch

I fine it hard to believe that you had a cardiac episode and didn't know it?

-------------------------
I was right.

I am a congenital idiot, and I have not otherwise stayed at a Holiday Inn recently BUT, , , , , , The results of my Cardiac Stress Test are in and, as such, this is my Official self diagnosis:

Primary Diagnostic Code: NO ALERT REQUIRED


I feel like Super Man !!!!


-------------------------
Dora Hates You

Edited: 04/24/2021 at 10:34 AM by dingpatch

HELL YEAH!



-------------------------
I was right.

The VA has "activated" my Donor so, it won't be long now and I'll be off to Nashville.

-------------------------
Dora Hates You

No schedule yet, The Nashville VA is waiting for schedule info from the National Marrow Donor Program (Be The Match).

-------------------------
Dora Hates You

make sure to drink some glue so this one sticks. You have been through enough, time for some easy livin and fin makin.

-------------------------
I was right.

The Donor can't meet the schedule that the VA wanted and, as such, his "new" date puts me outside of the "60 day window" since my last check-up in Nashville, , , , so, , , ,! I need to fly to Nville on June 2nd, have new Bone Marrow Biopsy and blood work on June 3rd, and fly home on June 4th. Then, , , , , , If All Goes Well, , , , I will be back in Nville on July 5th to start the Real Thing.

-------------------------
Dora Hates You

UPDATE:

Probably won't have to go to Nville on June 3rd. The Lake Nona VA is trying to work me in for a BMB there, no matter.

My nurse laid out a pretty precise Nashville schedule for me but, 8 fooking days of chemo!!!!!!!!!!!!!:

--07/05/21: Arrive Nashville
--07/06/21: eval #3 + Bone marrow
--07/07/21: testing
--07/08/21: nothing
--07/09/21: see MD
--07/10/21: nothing
--07/11/21: nothing
--07/12/21: preadmits and nothing to eat or drink after 2200
--07/13/21: PICC line placement
--07/14/21: Day -8: fludarabine (outpatient) and then admit to hospital
-07/15/21: Day -7: fludarabine
-07/16/21: Day -6: fludarabine
-07/17/21: Day -5: fludarabine & Busulfan
-07/18/21: Day -4: fludarabine & Busulfan
-07/19/21: Day -3: fludarabine
-07/20/21: Day -2: thymoglobulin
-07/21/21: Day -1: thymoglobulin
-07/22/21: Day 0: stem cell infusion
-07/23/21à ________: D+1 to D+100: stay in Nashville for post-transplant follow up and recovery

-------------------------
Dora Hates You

Edited: 05/15/2021 at 05:08 AM by dingpatch

YAY!!!!!!!!!!!

I got to ring the Chemo Bell yesterday!!!

Completed 50 days of the Vidaza chemo since January 2020!!! 2 injections every visit!!

My MDS (Myelodysplastic Syndromes) is not cured and will otherwise stick to me until I get the Bone Marrow Stem Cell Transplant in July. So, I'm getting ready to spend 4 months in Nashville!!!

-------------------------
Dora Hates You

You are one tough bitch!

Now go on and beat this mofo!

-------------------------
I was right.

Just heard from my Transplant Nurse, Donna!!!

My Donor is in process and Donna says for me to "lock down" the schedule above!!!

"Good morning. Lock it down!

--05/24/21: BMBx local: done
restart bridging chemo locally

Donor:
start GCSF 6/11/21
collect 6/15/21
Cells cryo: 06/16/21"

-------------------------
Dora Hates You

I am so very Blessed to have Donna on My Team!!!! Make no mistakes about this, , , , , in the "world" of Bone Marrow/Stem Cell Transplants, , , , , she is at The Very Top of the List in the USA!!!

-------------------------
Dora Hates You

Edited: 06/01/2021 at 01:43 PM by dingpatch

Hoping the best for you!

-------------------------
"Surf everyday as though it were a gift!" -- John Holeman