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Topic Title: The Bitch is back, , , , , Cancer
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Created On: 07/29/2017 06:04 AM
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 09/22/2017 04:20 AM
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dingpatch

Posts: 12255
Joined: 07/24/2003

UPDATE, , , ,

Saw the Health First Oncologist yesterday morning (9/21) for my first chemo follow-up. Good, and bad.

No, nothing wrong, I'm OK, and am still expected to be just fine. "How's this?", "how's that?", "that is due to the Prednisone.", "this is due to the one part of the chemo.", etc. . . But, my VA Oncologist is still concerned about my Lymphoma being a "comeback / recurrence" rather than being a "new" case and, as such, she has pushed for "The Complete Monty" in my treatments; Cage Match Chemo, bone marrow transplant, etc. . . .

My Health First Doc does not feel that it is warranted because it has been 5 years since my last "problem", but he is proceeding with checking all of his boxes:

> He is going to consult with two (2) of his Lymphoma expert friends in Europe.
> He has put me in for a "Bone Marrow Consult" at the VA (for possible transplant, etc, , ,).
> He is lining up for me what I should expect if I do in fact have to be admitted to Holmes for inpatient Cage Match Chemo.
 09/22/2017 06:13 AM
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Cole

Posts: 31785
Joined: 07/22/2003

Do it all and kill the bitch off for good.

-------------------------
Trump/Putin 2016!
 09/23/2017 06:27 AM
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dingpatch

Posts: 12255
Joined: 07/24/2003

Random notes, , , ,

Swelling in the mouth? Yep, sure, doing that too. Perhaps not too big of a deal, but, , , , you know how your gums and/or tongue gets cut-up/irritated when/if you chip a tooth? Yep, every single little chip, nick, crack in my teeth have worked my mouth raw. It is "subsiding" now, but Wednesday was a mother.

Constipation? Yep, sure, been there, done that, I even made my own Tee Shirt! Not too bad this time (so far). Everything seems to be slowly working, just very solid (if ya know what I mean). Found a broccoli salad at Walmart that seems to move things along. Last time, 5 years ago, I had to call the "on call" line about it at 2 in the morning. I was actually in tears. The on-call Oncologist called me right back and told me to chug some Miralax and wait for it to work, but that if it did not work, go to the ER, but that my expected experience in the ER would probably be a lot more unpleasant than my current one!

Drink lots of fluids? Yep, that too. Your body starts working ASAP on getting the chemo out. Big, big, urge to pee about every 2 hours, all through the day and night. And, at times, it is a "right now" thing, with a pretty fair amount. Drinking bottled water as I can.

Keep your weight up? Ya, sure, but NOTHING tastes all that good. Not that it tastes bad, it just does not taste. Luckily, I have not been nauseous at all (so far). Taco Bell with lots of hot sauce is palatable. Had some chicken tenders last night, actually dripping with Crystal hot sauce and agave nectar. JalapeƱo potato chips have a faint flavor of "something".
 09/23/2017 06:23 PM
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theglide

Posts: 7102
Joined: 08/06/2003

Sorry for your discomfort dingpatch, hang tough and when it is over you will be back stronger than ever!
 10/01/2017 06:59 AM
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dingpatch

Posts: 12255
Joined: 07/24/2003

UPDATE: I WAS ON THE EDGE OF FUCKED AND HAD NO IDEA I WAS HANGING TEN OVER A CLIFF, , , ,!!!!!!!!

The constipation mentioned above worsened and came to the point of complete. It seemed that the Miralax was doing nothing. And, all of the grunting-and-groaning and pushing while trying to pass the tiny rock hard turds that where there made my anus as tender as if you had worked it with a dry corncob! I could not take it anymore.

So, last Tuesday (9/26) sent my PCP a message and I cleaned up a bit and did a walk-in with my PCP at the Viera VA Clinic. The PCP's nurse takes me back and tells me that she had left me voice mail and that I should have called her back before I came in. When I had looked at my phone I had seen that there a missed call, but no voice mail ( the V-Mail was still recording). No matter, here I am. The Doctor needs to know what, and how much, you have been taking? Miralax, 4 doses since Saturday night, (filled to the line in the blue bottle cap). Well, chat, chat, chat, , , , you know it could be over 2 hours before he can see you? Yes, but here I am, and I'll wait as long as I need to. Well, OK, I'll take your vitals, Blood pressure, OK. Oxygen and pulse, OK. Temperature, , , , OH, you have a 101.8 fever!!! He's going to see you right away. Go have a seat. Within 10 minutes I'm in his office. Your constipation is only interesting right now, but your fever is of very great concern, you're going straight to the hospital. I'll wheel you over to the Triage Unit where we'll wait and see where they want to send you. It was only about 15 minutes and he came back and told me that transportation was being arranged to get me to the Lake None VA Hospital ASAP!

So, I get to the Lake Nona ED (Emergency Department) and they take my blood, vitals. My fever had gone down with the Tylenol they had given me at Viera, but it had gone back up to 99.9, so more Tylenol. OK. So, I guess the blood labs have come back, , , , Because the head ED Doctor comes in and tells everybody to Get Out and to gown and mask before they come back in, Full Contact Precautions, I was "Neutropenic". I had no White Count!! So, the Vascular Access Team (IV) got my IV going and I went to my room hooked up to a big bag of Vancomycin.

So, Wednesday (9/27) the Hematologist comes to see me and we have the usual small talk, , , then down-to-business. I know my White Count was/is low, but when can I go home? Well Dingpatch your count was not "low", you did not have anything to count; your "count" was officially 0.0! I/we cannot/will not discharge you until it gets back over the XXX threshold. You have no immune system right now, the Chemo has killed it. If you had not done that walk-in and had, let's say, got a cut or a cough, you could be here later in the ICU fighting for your life!!! All the IV antibiotics were not because I had an infection but rather to keep me from getting an infection.

I'm "OK" now and got home yesterday afternoon (9/30). I'll fill in a bunch of blanks later.

Edited: 10/06/2017 at 05:18 AM by dingpatch
 10/04/2017 05:39 PM
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dingpatch

Posts: 12255
Joined: 07/24/2003

UPDATE:

> Lost 15 pounds from 9/21 to 9/30. Have gained 5 back.

> was on two (2) bags of antibiotics: one was every 6 hours, the vancomycin was once or twice a day. The vancomycin "burned out" the one vein in my right forearm, still sore. They put a new IV in my left forearm for the last day.

> my next CHOP chemo session will include "stuff" to help prevent white cell loss.

> my hair started leaving me Wednesday morning (9/27), shaved my head when I got home.

> waiting on a new chemo schedule, , , , my "authorization" expired at midnight 9/30 when fiscal year 2017 ended.
 10/04/2017 06:29 PM
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Burry

Posts: 5808
Joined: 07/22/2003

Ding...glad you caught their attention!!!

and if you need hair...i have plenty!!!

-------------------------
. " I like Ike!"



Dark Matter is hard to sea...

If you don't go looking for it - you will never find it.

http://beatbrian.com/burrysbreak/
 10/06/2017 02:18 AM
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palerider

Posts: 1942
Joined: 03/09/2005

U got this buddy. Think positive!

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Style is what you make it!
 10/06/2017 09:49 PM
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sillysalt

Posts: 877
Joined: 05/19/2004

Thank you for sharing this painful shit. You will beat this, brother...

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Who needs a better life?
 10/08/2017 08:55 AM
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Cole

Posts: 31785
Joined: 07/22/2003

Constipation saved your life. That's a new one! I bet five of that fifteen pounds dropped out when the blockage freed up.

I sounds like a rough ride, but keep at it. We are all pulling for you.





-------------------------
Trump/Putin 2016!
2nd Light Forums » NPNR » The Bitch is back, , , , , Cancer

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